The symptoms first started as plantar fasciitis, then I had a frozen shoulder that I thought was from tennis, then my right hip started hurting, then debilitating fatigue. After a few months, I knew it was Lyme because my children and husband have had it. I went to get tested by a doctor in NYC who confirmed my suspicion. I did a mixture of antibiotics, herbs, tinctures, and IV treatments for 6-9 months. I started to feel better and thought I was back to normal. Six months later, I had a sudden death in the family and slept in a hotel room with visible mold. The exposure to mold started the next episode, which was much worse. Overnight I had a painful growth on my chest the size of a golf ball, then another growth popped up on my hand, then one appeared on the back of my neck. Over two weeks, I went to the ER three times. The first time because of the three growths, the next time for a spinal tap because they thought I had meningitis, and the last time I felt I had had a heart attack. Every time, my results came back normal. They finally told me to see a psychologist because there was nothing wrong with me. I knew it was my Lyme back again.
I went from doctor to doctor, most were focused on Lyme, or very familiar with Lyme. Each time I would get a little better but, not 100%. I tried every...(continued below)