Lyme Organizations

The American Lyme Disease Foundation (ALDF) is dedicated to the prevention, diagnosis, and treatment of Lyme disease which, in the U.S., has been defined historically as a tick-borne bacterial infection caused by the spirochete, Borrelia burgdorferi sensu stricto.The Foundation plays a key role in providing reliable and scientifically accurate information to the public, medical community and government agencies about Lyme disease and its effects on human health and quality of life.
The Avril Lavigne Foundation supports people with Lyme Disease, serious illness or disabilities. We raise awareness and aid PREVENTION of the Lyme epidemic. We impact the lives of individuals and families affected by Lyme Disease through TREATMENT grants administered by our charitable partners and we accelerate scientific RESEARCH.
Bay Area Lyme Foundation is a national, 501c3 non-profit organization based in Silicon Valley and collaborates with world-class scientists and institutions to accelerate medical breakthroughs for Lyme disease. It is also dedicated to providing reliable, fact-based information so that prevention and the importance of early treatment are common knowledge.
Global Lyme Alliance is the leading 501 (c)(3) dedicated to conquering Lyme and other tick-borne diseases through funding innovative research, offering effective education and awareness programs, supporting the needs of patients and caregivers, and advancing, through science and data, reliable diagnosis, treatment, prevention, and an eventual cure. Great website with many resources for lyme patients.
ILADS is a nonprofit, international, multidisciplinary medical society dedicated to the appropriate diagnosis and treatment of Lyme and associated diseases. ILADS promotes understanding of Lyme and associated diseases through research, education and policy. We strongly support physicians, scientists, researchers and other healthcare professionals dedicated to advancing the standard of care for Lyme and associated diseases.
Lyme Connection is a unique community-based organization, founded by families impacted by tickborne disease. We offer BLAST prevention programming as well as patient support services and educational events. Lyme patients and their families benefit from our free monthly support groups, seminars, annual conference and health fairs. Medical and mental health providers take part in the professional programs Lyme Connection offers to improve patient care.
The Lyme Disease Association, Inc. (LDA) has been granted 501(c)(3) non-profit status by the IRS. Its mission is promoting awareness of and controlling the spread of Lyme and other tick-borne diseases (TBD) and their complications through education and other means; raising and distributing funds for Lyme and tick-borne diseases (TBD) research, education and other related Lyme and TBD issues; assisting underprivileged patients in connection with Lyme and other TBD.
Our mission is to provide grants to enable eligible children and young adults with Lyme disease to receive proper treatment and medication as well as raising awareness about Lyme disease.
LymeDisease.org is grounded in the principles of patient empowerment, participation, and self-determination. LymeDisease.org empowers individual patients by educating them, amplifying their collective voice, and providing research tools like our published big data surveys and the MyLymeData patient registry. We believe that there is strength in numbers.
The LivLyme Foundation is a nonprofit organization providing financial assistance to families of children suffering from Lyme disease, funding scientists for Lyme and tick-borne disease research, while delivering tick education and awareness around the globe.
Ride Out Lyme’s mission is focused on raising funds for patients affected by Tick-Borne Illness by creating and fostering collaborative partnerships with philanthropic organizations in the Lyme community. From the time of the organization’s inception to 2020, over $500,000 has been raised with financial grants providing treatment, wellness, and support programs for Lyme patients and their caregivers.
Sam’s Spoons Foundation was created in 2018 to help defray the out of pocket expenses incurred by families affected by chronic medical conditions from Lyme disease and co-infections. Chronic Lyme Disease is not only difficult to manage, but it means that people are left 100% financially responsible for their treatment. This nonprofit organization is focused on helping those in need financially, while working with other nonprofit organizations to raise awareness, provide educational outreach efforts for youth and their families, instill the importance of prevention, and push important policies around tick bites and Lyme disease in Pennsylvania.
We are the largest private funder of Lyme and tick borne disease research in the country. We underwrite groundbreaking studies in prevention, diagnostics, and treatment, and have also made awareness and education an integral part of our mission. We show the overwhelming impact these illnesses can have on people’s lives, from financial stress to mental health challenges, and we strive to educate healthcare providers on the latest tools to diagnose and treat them.

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