Anyone with Lyme knows that not many treatments or tests are covered by insurance, and Lyme treatments are expensive!! Lyme’s financial costs result in many patients receiving the treatment they need to get better to the point where suicide rates among Lyme patients are something we need to acknowledge. In addition, financial hardship causes many bankruptcies and divorce. Several organizations have been established for grants for Lyme treatments. Please let us know if there are any we missed so we can add them to the list.
LivLyme Foundation provides treatment grants for those under age 21. The organization was founded by Olivia Goodreau, who at 12 years old was diagnosed with Lyme disease after years of battling undiagnosed symptoms. Her mission is to help alleviate the financial burden of Lyme disease from other children and their families. The organization also works to raise money for research grants and treatment development for Lyme disease.
LymeAid 4 Kids provides up to $1000 for treatment of those under age 21. Developed with the help of author Amy Tan, the fund is for children who do not have insurance coverage or receive reimbursement for Lyme disease treatment/diagnosis and whose families have economic difficulties.
Lyme Connections Assistance for Connecticut helps residents who need financial assistance to diagnose and treat Lyme and other tick-borne diseases. This fund is open to CT state residents who are at or below 85% of the CT state median income level. All who receive state or federal assistance are encouraged to apply.
LymeLight Foundation provides treatment grants for young people through age 25. The foundation was started by two families who first-hand experiences the financial toll of Lyme disease and saw how little insurance coverage treatments get. They work to raise funds for children and their families and have to date raised over $3 million dollars.
Lyme TAP Program (Test Access Program) helps pay for Lyme diagnostic testing. Lyme TAP is a nationwide program that has no age restriction and will allow for patients to receive up to 75% back from the listed lab price.
The Lyme Treatment Foundation, Inc. is an all-volunteer, 501(c)(3), a non-profit organization that was created to provide grants to people of all ages in the United States and Canada, to fund diagnostic testing and treatment of Lyme disease and the associated tick-borne illnesses. Lyme Treatment Foundation provides grants up to $4,000 to those in need to help pay for blood tests and long-term treatment of Lyme disease and other tick-borne.
Ride Out Lyme‘s mission is to crush Lyme disease and Tick-Borne Illness by funding grants for adults (26 and older and residing in the US) in need of financial assistance to pay for their medical needs.
Sam’s Spoons Foundation was created in 2018 to help defray the out-of-pocket expenses incurred by families affected by chronic medical conditions from Lyme disease and co-infections. Applicants were granted financial assistance of $500-$1,500 each. Mainly focused on Pennsylvania residents but Lyme warriors in the surrounding states have been accepted and helped!
The Ticked Off Foundation is dedicated to the prevention, awareness, and support of patients with Lyme disease and other tick-borne illnesses that have become the fastest-growing infectious diseases in the United States. Their mission is to provide financial assistance and treatment support to Lyme and tick-borne disease patients over the age of 26 who are in crisis. The organization does this through grants, treatment discounts, and counseling in an effort to stem the tide of Lyme-related suicides.
If you are still struggling to connect with an organization that can help you on your Lyme healing journey consider raising your own fund. Government assistance is tricky but this website Benefits.gov lists out every state’s assistance and how to apply. Websites like GoFundMe are another resource where you can raise money for any Lyme treatments that are a financial strain.